Below are excerpts from letters that I have received by those who make profits from residential services. I understand the attacks against me since he views the accurate data being presented from original sources as a threat to his livelihood.
What I would really like him to consider is the threat to the lives of those less able them him who will have all funding and resources cut if this data is not looked at accurately. He is refusing to do that but instead throws arrows at me by saying the data is manipulated. The data is presented exactly how DDD records it in their records, how the agencies themselves report it to DDD and how the agencies themselves report to the IRS – hardly manipulated on my end.
This CEO has clearly not read the reports nor is he aware that most of my research is geared toward improving the quality and safety of care to those who do not reside in the RHC and to also bolster services and resources to people in the community at large. His fear and anxiety about true data being exposed is clearly evident in his attacks. It’s interesting that he does not counter-present with facts that would indicate what I have is incorrect – I assume that is because those “facts” are non-existent.
“I will not be communicating with you in the future as it is obvious that you are unable and/or unwilling to support community services, which is evidenced by your focus on presenting deliberately misleading data to state personnel and legislators.
Your lack of knowledge and understanding of services and funding is glaringly apparent in one report that you posted in which you claim that the “Cost correct for Resident Acuity” is over $850 per person for the Arc of King County, while you list the RHC costs at or below $200. I fully understand that you are the parent of a person that resides within an RHC, and that you believe you are advocating for all people who experience an intellectual or developmental disability to have access to a continuum of care. However, your approach plays as one-sided, is immensely inaccurate, slants towards de-valuing community residential services, and does notsupport a continuum of care.
Your continued efforts on a daily basis to distort the truth and inflate the data to present community services as more expensive sends the erroneous and destructive message to decision-makers that services can be further cut. You are playing a dangerous role in your efforts and as such, I ask if you are even aware that your efforts will lead to further erosion of community services for people with developmental disabilities and will have grave and serious impacts upon those individuals who currently live independently in the community with community residential supports?
With regard to the data you present, I wanted to make some corrections. It is important to correct these inaccurate figures since one of the reasons that we continue to face cuts is because individuals and organizations present data that has been either incorrectly calculated or misrepresented to somehow convey that community programs are more expensive, therefore being overfunded. By presenting reports that state community programs are expensive, it sends the message to legislators that we should be cut. This is part of the reason why we are in this crisis.
Alpha Supported Living Services’ costs, on average, are above the average because 1) we are located in King County, which has the highest cost of living and therefore highest benchmark funding, and 2) we serve some more challenging individuals so our costs are higher than the average acuity level. For example, over 40% of the individuals supported by our agency formerly lived in an RHC, 33% have a diagnosis of Autism, and approximately 40% have an accompanying mental health diagnosis. As such, our costs are higher than the average due to acuity levels. ”
This last point regarding costs are higher for higher acuity is one example that I have been trying to communicate – it is good to see that he recognizes that fact here but when speaking to legislators and the public, that would not be addressed. As an example the attached graph indicates the cost of care as reported by each agency with respect to their reported “Average Hours per Day for Resident Care” – a measure that indirectly looks at client acuity.
It is interesting to be aware that the average cost of care reported by DDD is $6400.00 a month. This average cost is equal to about 11 hours per day. On this chart, the highest reporting agency had 21.65 hours at $10,816 per month and the highest cost agency reported 18.22 hours per day at $15,620 per day.
Another VERY critical issue is that these reported costs DO NOT include medical, dental, nursing, psychiatry, prescription medication, therapies, education, vocational training, habilitation, FOOD and RENT.
My message as an advocate for a continuum of care is that these residents with high support needs are EXPENSIVE to care for no matter where they live. It is more cost effective, safe and less restrictive for many of them to live in the RHC. These are the FACTS – no manipulation, no inflation, only the facts.
This is the information which needs to be shared and understood – when people try to cut corners and under-report, people die. We have seen this happen already this past year.