Happy Mother’s Day -
Every one knows how ferocious a mama bear can be protecting her cubs and knows to get out of the way. I’m feeling like that mama bear right now and getting madder and madder. Someone is attempting to hurt my child – not just my child but the children of many of us and it’s time to step back or it won’t be pretty.
I’m tired of being nice and playing the game. I’m tired of DDD case managers denying services to children and adults who are needing services and who are approved for those services yet DDD continues to deny them. I’m tired of the DDC acting as if they know what’s best for our most vulnerable citizens yet shunning and censoring information from the experts – parents and caregivers. I’m tired of so-called “disability advocates” from The Arc chapters behaving as if they care about our most vulnerable citizens and I’m mostly tired of all people from those agencies deliberately causing harm to our citizens.
I can tell you that a DDD case manager wondered why I didn’t restrict fluids from my son so that he would not wet his bed. This was not just a little wet, this was a monster wetting which necessitated laundering every bit of bedding every day due to being soaked. This was not a case of simple bedwetting but a case of neurogenic bladder that only relaxed at night so that was the only time he could really empty his bladder – while he was asleep – the only time his body ever relaxed (that is if he did sleep.)
This is the same DDD Children’s manager who I overheard tell my son’s case worker “do not offer them anything.” That was after a meeting I had with them while he was hospitalized his for the 5th time in Seattle Children’s Inpatient Psychiatric Unit, psychotic and manic. We had looked at Fircrest for him, we and his healthcare team knew it would be the best place for him – particularly since we had been told that another hospitalization would not be approved. Our son was 14 and the DDD Children’s manager said “DON’T OFFER THEM ANYTHING?”
What is wrong with this picture? Whatever it is – it needs to change and I’m doing my best to make changes. Just as Ed Holen and Sue Elliott from the DDC and The Arc say on their Olympia Insider videos on Youtube “Change is made by those who show up.”
I’m going to be showing up!