Washington State Developmental Disabilities Council is out of compliance with Federal Regulations

According to the US DD Act , the state Developmental Disabilities Council membership must include at least ONE immediate relative or guardian of an individual with a developmental  disability who resides or previously resided in an institution or shall be an individual with a developmental disability who resides or previously resided in in an institution.   This is quite clear.

Washington State does not have a representative and I cannot find out when our state’s Developmental Disability Council had such a representative.  I have tried communication with Ed Holen, Executive Director of the DDC regarding this for over one year.  He cannot tell me who this person is.  Last year he told me it was a person who had already retired from the council and she was only a temporary and was not an immediate relative.  Since that time Mr. Holen has not answered emails or has evaded the question.  How hard would it be for him to give me the name of the person who holds this position?  All the names of the council members are public and are appointed by the Governor.

Now Mr, Holen wants to waste our taxpayers money and waste time by driving from Olympia to Seattle to meet with me to discuss this.  He will not communicate via email for such a simple request.

I am particularly disturbed by this lack of adherence to Federal Law due to the extreme bias against the population which needs the services and supports of the institutions.  Without representation at the table which is making policy decisions, how are these people’s voices going to be heard.

These actions (and lack of actions) on the part of the Developmental Disabilities Council is discrimination against our most vulnerable.  When will this end?

4 comments on “Washington State Developmental Disabilities Council is out of compliance with Federal Regulations

  1. Jeanie Barrett says:

    During a 2010 legislative hearing session I remember a committee member, Rep. Alexander, asking a DDC representative “if any RHC parents participated in preparing his budget report”. He said, “No.” The report was about how DDC could help the budget problem by cutting DD expenses – one of them was to close the RHCs! It was a rather strange list of services that you think they would be advocating for, NOT CUTTING. This person was actually “boasting” about how the state could save money by following their suggestions!

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  2. Paul Strand says:

    About 15 years ago Ross Retter sat on the DDC. His son was then at FHMC and is now at Fircrest. To my knowledge he was the last RHC parent to be on the DDC.

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    • Saskia Davis says:

      Unless I have the wrong council in mind, since then RHC parent Bill Anderson had the honor of being abused by them for 2 terms and rumor has it that RHC sibling, Bob Doyle gave them sufficient challenge that they refused to have him back for a second term.

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  3. I received a response from the Governor’s Boards and Commissions Staff;

    They do agree with what I stated about the federal regulation and even gave me the rule:
    Per the Public Law 106 – 402, Section (6) (A) – at least 1 shall be an immediate relative or guardian of an individual with a developmental disability who resides or previously resided in an institution or shall be an individual with a developmentally disability who resides or previously resided in an institution.

    They then state that there is a person who fulfills this position, a woman who uses the RHC for respite for her daughter but this appointment was only a temporary 8 month appointment which has already expired.

    1. receiving respite is VERY different from being a resident so this person did not fulfill the requirement, and
    2. The person they named had no idea that she was the RHC representative or that the DDC required one.

    According to the Governor’s Board and Commissions Staff, they “take meeting the state and federal requirements for all board appointments seriously and are confident that Ms. Franklin meets the federal requirements for the board, as her daughter receives respite services through one of our RHCs.”

    I have communicated to the Governor’s Board and Commissions that Ms. Franklin actually did not meet the requirement and that I do hope that a person who actually fills the requirement as stated in the US DD Act is appointed.

    It has been several years since the DDC has had an RHC representative.

    (This in no way is a comment about Ms. Franklin – I do not know her – but is a comment on the discrimination of the Developmental Disabilities Council and the Governor’s Board and Commissions staff on not fulfilling the requirements as written in the Federal US DD Act.)

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