Abuse and Neglect in the Hospital

I am beside myself with anger, frustration and helplessness regarding the situation with our friend, Kevin.
Kevin has not been “on hold” in the ER at PeaceHealth St. Joseph Medical Center in Bellingham, Washington since April 24, 2019 (for this episode)

PeaceHealth

Below are messages that I received from Kevin’s mom and legal guardian last night and this afternoon.  Kevin is a 26 year old young adult.  Kevin is autistic and is a vulnerable adult with a legal guardian.

“Cheryl, the hospital let Kevin leave the hospital and he was on scrubs and no shoes running down one of the busiest streets in town. He made it to the respite bed where he was a couple of weeks ago. He ran in the middle of cars for 2 miles. They called me and let me know he was there, the hospital called me after the respite bed told them he was there. He had blood blisters in his feet. Then they had the audacity to tell Tom (respite care administrator) that Kevin checked himself out of the hospital. The police came later and took him.

“The police took him back to the hospital and told the ER manager that Kevin is gravely disabled and should not be let go in streets like this.

I have asked for a DMHP assessment, but they are giving me the run around

He has blisters on his feet and sticks stuck in his skin – the doctor is supposed to see him sometime today.

They just called me and said they will let him leave again. I guess the DMHP assessment was not done because it was done when he first got to the ER.

It’s a never-ending mess.”

I went to the Bellingham police station and they said that when they drop him off at the ER they let the hospital know that he is a danger to himself and others and needs to be in involuntary confinement.  The hospital disagrees.  I hope he does not escape again tonight – it was a miracle that he didn’t get hit by a car yesterday.

This ongoing nightmare has been reported to the DD Ombudsman, Adult Protective Services, the Department of Health and Developmental Disabilities Administration yet no action is taking place and the hospital is continuing to neglect Kevin and put his life at risk.

As a mother, nurse and advocate I am totally appalled and sickened by the lack of attention and concern that these state agencies, which are there to provide protection and care and the hospital which is to provide safe, appropriate healthcare continue with this neglect.

This is more than insane – is anyone listening?  Does anyone have any solutions?

Kevin’s mother has requested over and over again to allow Kevin to return to Fircrest Residential Habilitation Center (one of our States’ Intermediate Care Facilities) but DDA has continued to refuse saying there are no beds.  If this is an entitlement and there is “no refusal” how can DDA say there are no beds?

Is the only choice to let the hospital and state agencies continue to neglect their duties until Kevin runs into the street and gets killed by a car?  Then what?

Susannah Frame – King 5 Investigator – Please read this and help!

 

Kevin is trapped!

Many have been following the issues of those with IDD who have been dropped off and abandoned by their group homes into the hospitals.  This is not a new issue but one that has finally been acknowledged as happening.  We need a solution  – NOW

Recently, Keven, our 26 year old friend has been “on hold” in the Emergency room at St. Joseph’s Hospital in Bellingham, WA.  I sent an online complaint to the Washington DD Ombudsman and maybe the more complaints they receive, the better the chance at a positive solution – not only for Kevin but for others.

Here is the information that I submitted on my complaint – feel free to submit your own complaint regarding the issues that are happening. DD Ombuds complaint submitted May 6 2019

Today, Kevin’s mom informed me of the following information she received:

Kevin’s situation…

This afternoon after visiting Kevin at St. Joseph Hospital, I was told that if he attempts to leave the unit (SECU).

.. they will let him leave the hospital and 911 will be called.

When is this nightmare going end??

 

 

Vigilante Justice

When I got home from work last night, my husband handed me the New York Times and told me to read the Opinion Essay written by David Brooks titled

The Cruelty of Call-Out Culture

“Once you adopt binary thinking in which people are categorized as good or evil, once you give random people the power to destroy lives without any process, you have taken a step toward the Rwandan genocide.”

bullying.jpeg

 

It really was good timing given the events of the day.  I had found out that SB,  a person who identifies as the Co-Chair of the Seattle Commission for People with Disabilities had written a scathing letter about me to the CEO/President of the company that employs me.  My job has nothing at all to do with my volunteer work with this blog or with my volunteer advocacy work so the only reason that Bickley would have to write such as letter would be harassment and abuse.

Since I had to file a police report on November 3, 2018 for cyberbullying and libel due to another public essay written by SB,  I have not seen or heard anything from this person.  Why the sudden letter writing campaign now?  What is the purpose of the harassment and what does SB have to gain by abusing and bullying others?

There is one word which could have nipped all this abuse in the bud – ACCOUNTABILITY.   Unfortunately, when my encounters with SB started, SB refused to be accountable and continues to refuse – instead fabricating actions of abuse from others and claiming to be a victim from all the ableist people in our communities.

Intimidation concept.

 

Now, SB has also solicited a friend, Jennifer White, CEO of Able Opportunities to also write a letter to the CEO/President of my employer.  I have never met Ms. White nor have I ever had any contact with her.  She also wrote that she did not know me but asked if I was using these “bullying tactics with Mr. Bickley, how is she interacting with other vulnerable adults with disabilities who receive services at your hospital?

Now, again, with the escalation of abuse and threats written by SB in this recent letter, another police report will be filed, legal counsel will be retained and there may be court interventions.

Responsibility highlighted in green

It is shameful that things have been allowed to get so out of control.  The issues are not new and many people have reported complaints of abuse, harassment, stalking and other behaviors of SB to the City of Seattle.

Mayor Durkan did not reappoint SB to his Commission seat and SB then solicited the Commission to appoint them to a Commission seat and also to re-appoint them to the co-chair position in August 2018.  September 21, 2018, SB was “voted out of committee” for this Commission seat despite several people providing public testimony against this appointment.

Typically, once a Commission Appointee is “voted out of committee”  they are officially appointed by the Full Council the next council meeting.  The other Commission Appointee from the September 21, 2018 committee meeting was appointed on October 1, 2018.  To this date, SB has not been appointed by the City Council identifies as the Co-Chair of the Seattle Commission for People with Disabilities and writes letters with that title.

It’s one thing to be called out for something one actually did but when one is “called out” for false allegations against you that is cyberbullying/libel.  It’s a whole different ball game.

NPR Invisibilia Podcast episode

 

How to create a crisis – deny services

Way back in 2011 and 2012 when Washington State was “researching” issues related to caring for our DD population, there was a DD Task Force which met several times.  The goal was to discuss the future of DD Care in our state with emphasis on the consolidation and closure of the close the Intermediate Care Centers.

Several of the predictions I had and tried to communicate to other DD Advocates and legislators have come to fruition.  Please listen to the families who are the real experts and survivors.  Advocacy Agencies such as The Arc, Disability Rights Washington and other similar agencies which receive public funds to provide advocacy must abide by their  policies – policies which may not be in the best interest of those actually involved.

  •  SL Start and client neglect/abuse – I reported issues in August 2012 to the legislature.  Senator Adam Kline only provided ridicule and sarcasm in his response to me –

“But I suspect this won’t happen.  I could be wrong, but I suspect that this story’s real value to the RHC advocates is in its expected political effect.  It portrays the RHC families—even the residents—as pawns in a game in which the malevolent community advocates are the operators.  SL Start is the villain in this instance, maybe the Arc the next time, maybe the Governor.  And you are “silenced” by these conspirators.  The victims are rendered mute, while only the conspirators may speak.  The conspirators “manipulate some of our community members.”   Oh, please!”

Obviously, this Senator believes this situation is fabricated to make an issue.  I wish it was but it’s not. This Senator goes on to berate me for being an advocate for safe and appropriate care and categorizes me into the “pro RHC” side.  When will he and others realize that it’s not about sides – it’s about safe and appropriate care for each individual.

April 2018 Headline – Apparently I had some real information that needed some attention.  If only people had taken the time to listen, trauma could have been alleviated.

Washington Shuts Down Care Provider For Disabled Adults, Now Families Face Tough Decisions

Below is an excerpt from the blog post dated September 8, 2012.  I address the issue that DDA did not even consider the issue of DD clients using the hospital and ER as crisis care.

That comes from a different budget so it’s not a factor to DDA.  Well it should be because it greatly affects the PEOPLE involved in addition to adding overall cost to our state’s budget.

While the concept of the crisis team is good, why not use the facilities and services we already have in place to run this program out of? We have the space and expertise to do this already and it seems ridiculous to start a whole new program for something that we have which already works very well.

I believe this was also part of Julianne’s testimony and she is 100% correct in her assessments of the situation.

As a parent who has survived crisis after crisis, I can also tell you that you should look to the hospital emergency room data on how many people are taken there for crisis. I believe you will find a lot more information regarding where folks with developmental disabilities go when they have a crisis. I also know this is the case from working with other families and hearing their stories. Talk to the ER nurses at Seattle Children’s and ask them how many families bring their kids with DD (particularly autism) there for crisis intervention. Talk to the Inpatient Psychiatric Unit doctors, nurses, and staff and Seattle Children’s. I believe you will find staggering numbers. You will see a much different picture than one you may hear from DDD. DDD is not aware of many of these crisis admissions to the hospitals because they are not notified.

What about connecting the crisis care team with the local hospitals and emergency medical response systems? What about connecting with the Crisis Line? I know that not only in our family’s case but in many, many others, these are the systems which we accessed in times of crisis. These are the places in which we will be able to realize the extent of the crisis situation with people with DD.

Please read the report the DD Ombuds   published and consider the tasks outlined to address this critical problem.

Provide appropriate funding to community residential providers and support the ICF to provide appropriate care for DD clients in crisis.

Special Certificates/Sub-minimum Wage – Public Comments submitted

When reading the Public Comments submitted to the Seattle Office of Labor Standards with regards to the rule change and subsequent legislative change in Seattle, I get a totally different view than that presented to the public by the Seattle Commission for People with Disabilities and The Office of Labor Standards.

Public Comments to OLS regarding special certificates 

Effective January 2018, sub-minimum wages with special certificates were eliminated within Seattle.  Effective April 2018, legislation which eliminated special certificates, sub-minimum wage and choice was codified into the Seattle Municipal Code.

 

Unfortunately, this was not the choice of those directly affected but apparently, the work of one person who led the campaign – Shaun Bickley identifies as that person.

Bickley led the way for the subminimum wage ban

This person has waged a cyberbullying and libelous attack on not only me but others.  The screenshots above are from this person who identifies as the one who got Seattle to ban sub-minimum wage as a Commissioner with the Seattle Commission for People with disAbilities. Bickley claims that being pointed out in relation to this legislation has been harassment.

Be accountable and transparent.  The practice of gaslighting others is a tactic that is used by abusers.  Without any production of proof of fabricated allegations, the acts practiced by this person are cyberbullying and libel.

Haste Makes Waste – Seattle Style

The Ableds (or Allistics/Allists)

Shaun Bickley – “Breaking” Barriers

“Things I Mean to Know”

I was recently listening to the Podcast “This American Life” and was struck by the very question that I keep asking of advocates with regards to intellectual disabilities.   We are told over and over again that “evidence shows” yet have these advocates really looked at the evidence or are they just taking on faith what they have heard and have believed it?

Questions asked are “how do we know it’s true?”, “what is the proof of it?” “how much have you accepted without evidence?”

“Sometimes there’s a thing that you think you know, even though, right in front of you, staring you in the face, is clear evidence to the contrary.”  There are also the issues of denial  and deceit at play when censorship of opinions and experiences are practiced.

I’m keeping this here as a reminder to myself and others that things may not always be as they seem to be.  We cannot take things for granted and assume.  Just because someone says something and has an air of authority, it does not mean they are right, just, ethical or moral.

 

Shaun Bickley – Appointed as Commissioner to Seattle Disabilities Commission

Shaun Bickley, Autistic Leftist Activist,  full of vitriol and ableism, was confirmed today in a Commission Appointed seat on the Seattle Disabilities Commission.

Below is a link to the special meeting – there are several public comments which start at 12:15 and run through 26:00.  The  discussion with Bickley and Co-Chair ObeySumner regarding the appointment begins at 1:03:45 and runs through 1:31:29

I fully understand the process and the “hands-off” approach the city council is taking with a Commission Appointment. I also understand this is the first time there have been public comments opposing an appointment.  Given that this appointment, with knowledge of the allegations and evidence of abuse, libel, discrimination, violations of First Amendment and violations of the  Washington State Law Open Public Meetings Act, was confirmed sets a dangerous precedent in Seattle.

Civil Rights, Utilities, Economic Development, and Arts Committee – Special Meeting 

Is it an oxymoron that Mayor Durkan signed  Executive Order 2018-04: Anti-Harassment and Anti-Discrimination today?  This “will reform and update how the City addresses allegations of harassment, discrimination, and other forms of misconduct.”

Both Bickley and ObeySumner identify as autistic.