Shaun Bickley – Appointed as Commissioner to Seattle Disabilities Commission

Shaun Bickley, Autistic Leftist Activist,  full of vitriol and ableism, was confirmed today in a Commission Appointed seat on the Seattle Disabilities Commission.

Below is a link to the special meeting – there are several public comments which start at 12:15 and run through 26:00.  The  discussion with Bickley and Co-Chair ObeySumner regarding the appointment begins at 1:03:45 and runs through 1:31:29

I fully understand the process and the “hands-off” approach the city council is taking with a Commission Appointment. I also understand this is the first time there have been public comments opposing an appointment.  Given that this appointment, with knowledge of the allegations and evidence of abuse, libel, discrimination, violations of First Amendment and violations of the  Washington State Law Open Public Meetings Act, was confirmed sets a dangerous precedent in Seattle.

Civil Rights, Utilities, Economic Development, and Arts Committee – Special Meeting 

Is it an oxymoron that Mayor Durkan signed  Executive Order 2018-04: Anti-Harassment and Anti-Discrimination today?  This “will reform and update how the City addresses allegations of harassment, discrimination, and other forms of misconduct.”

Both Bickley and ObeySumner identify as autistic.

 

Endorsing a Bully

Disability Rights Washington is presenting their “Breaking Barriers” awards fundraiser this month.  Below is information from the Disability Rights Washington Website which describes this award.

Ex-Commissioner (Seattle Commission for People with Disabilities) Shaun Bickley, was chosen as the recipient for the Advocacy Award.  There are many of us in the disability community who have been victims of Shaun Bickley’s online malicious and cruel attacks, slander and libel.  We are upset about Bickley’s violations of the First Amendment as a Commissioner, falsified data and information Bickley presented to the Commission, the previous Mayor, the previous Director of the  Office of Labor Standards and the Seattle City Council.

In addition to the above allegations (all well documented in public records), Bickley had extreme disregard for the by-laws and code of conduct of the Seattle Commission for People with Disabilities.  In fact, after Mayor Durkan did not re-appoint Bickley to the Commission, Bickley took it upon himself to return to the Commission the next month and have himself voted in as the co-chair with a Commission appointed seat.  Bickley continues to refer to himself as the Co-Chair of the Commission despite not being appointed by the City Council.  This is a violation of the by-laws but evidently, Bickley is not held accountable to those by-laws.

“Bully”  is the least offensive description that many who have encountered Shaun Bickley use to describe his actions towards others.

How has it come to be that a BULLY is being honored as a recipient of this “Breaking Barriers” award?

 2018 DRW Breaking Barriers Awards! 

September 29, 2018

Each year, Disability Rights Washington presents its Breaking Barriers Awards.  These prestigious awards honor a business, an elected official or public servant, and an advocate with a disability for breaking barriers to advance the rights of and improve the lives of people with disabilities in Washington State. Specifically, Disability Rights Washington will present the following awards:

  • Advocacy Award
  • Public Policy Award
  • Business Leader Award

Advocacy Award

Disability Rights Washington presents this award to an advocate with a disability who has made significant contributions in the past year to advance the rights of people with disabilities in Washington State.

Breaking Barriers 2018 - Shaun Bickley

 

Shaun Bickley – “Breaking” Barriers

I was not at this meeting but I do believe there was chaos present given what I have witnessed and experienced at past meetings.
So many questions and concerns about Bickley – reading how he is disturbed by others who may not show behavior of respect and professionalism, I clearly remember the first in -person interaction I had with him.  Bickley, himself needs some lessons in being a professional and a public servant – volunteer or not, disabled or not.
Public Facebook Post this evening –

This is the email I sent Evan Philip in the Mayor’s Office, CM Lisa Herbold and her staffmember Shannon Perez-Darby, and Interim Director of OCR Mariko Lockhart.

I’m at my wit’s end with the city standing behind misogynists and white supremacists but bristling at the slightest criticism of their policies. Despite the work we have been able to accomplish, several of us are ready to quit after today if the city can’t deal with these issues and provide competent staff support.

*****

To all concerned,

I want to continue to express my disbelief at the city’s unwillingness to provide support to the Disability Commission, and its ongoing support of white supremacist, misogynist, and ableist behavior.

I don’t know how many Commissioners have to come forward and complain about misogyny and white supremacy from Mayoral and Council-appointments before the city takes it seriously. Apparently six isn’t enough. Ten? Fifteen?

Today I witnessed ChrisTiana ObeySumner co-chair by themselves while two older white men screamed at them, interrupted, and corrected them. At one point Eric Scheir began screaming at the top of his lungs at ChrisTiana, threatening to sue. People left the room,. Mr. Scheir is perfectly aware of his ability to physically intimidate women and non-binary people by screaming at the top of his lungs, and if he isn’t, he is unqualified to serve on the Commission. I can tell you he would be fired from any job I have ever had for that kind of behavior.

Jayson Morris is a Council-appointed Commissioner. Six Commissioners have complained about his behavior, the Co-Chair and the Director of OCR had a meeting with him to address his behavior, and the Co-Chairs wrote Councilmember Herbold about him on June 8. Nothing has happened. Eric Scheir is a Mayoral appointment who has exhibited this kind of narcissistic, racist, and misogynistic behavior since before he was appointed. Nothing has happened.

At what point do I assume that individuals acting as agents of white supremacy and misogyny, on behalf of the Mayor and City Council, are simply carrying out the will of those entities? Especially since Meg Bartosovsky and I were removed without even being spoken to because of our advocacy on the Commission. There is a pattern here, and it’s that white supremacists and eugenicists are given every chance and every opportunity to thrive, but developmentally disabled advocates who question the city are removed post haste.

Six Commissioners signed a letter asking for Marta Idowu to be replaced in her position as Commission liaison. Today, while this screaming rant happened, Marta did nothing. What “support” is OCR providing if they don’t address violence within the meetings, don’t keep order, don’t address micro and macroaggressions, and can’t even keep accurate minutes?

My peers voted to appoint me into a Commission-based seat and for me to continue on as co-Chair. I would love to continue the great work we have done, work the City has praised and been credited for, but I sat in that meeting feeling physically unsafe as a man screamed his lungs out at us with the full backing of the Mayor and City Council, and I’ve seen the disparate treatment we receive when we bring light to these issues.

I don’t know how many time I can ask that someone–the Mayor’s Office, OCR, the City Council–take responsibility for the situation it has created: to deal with violent Commissioners and to provide competent staff support to our meetings.

Thanks for listening,
Shaun Bickley
Co-Chair, Seattle Commission for People with Disabilities

Shaun Bickley For the record, it’s been 3 weeks and I still haven’t been given a reason why I wasn’t reappointed (and Meg Bartosovsky STILL hasn’t been told even as little as I have–they removed her without a word). I don’t expect this administration to reappoint me at this point, but I do expect them to be professional about it and to stop supporting racist, misogynistic, and ableist behavior.

 

Transcript of conversation between Cheryl Felak, disabled community advocate and Shaun Bickley, Co-Chair of Seattle Commission for People with Disabilities

May 17, 2018

This “discussion” took place at Seattle City Hall at a public meeting

Cheryl Felak statements     Shaun Bickley statements

I’m banned because you don’t agree with my opinion, my questions have not been answered I’ve just been told I’m a liar, 

  • You’re abusive

Huh

  • You’re abusive – you’re banned because you’re abusive

I’m abusive?  So what has been abusive about what I’ve said?

  • Calling people low functioning

I did not do that

  • Harassing people okay – I don’t really– I don’t really like – what is your point? Why are you here?

My point is that I would like to have some information shared with some facts

  • And I have told you repeatedly and you’ve said it’s a lie – you’ve been answered – you did a public disclosure request you already have the information that you asked for – did you pay for it- did you pick it up

Yes I have and I’d like to

  • Ok great –

 Tell you there’s information

  • Can you please not get in my face because you’re way too close to my personal space

Okay I’ll stand back

  • Thank you

I’d like to tell you that there was information and facts that were not shared with the commission and with others about jobs and yes, I understand supported employment – do you understand about transportation, what it costs, training, job development, job skill development was any of that

  • Yes – what’s your point

My point is – was that addressed by this commission

  • (Exasperated exhale and long pause) – uh we have two legal certificates – you understand the Northwest Center wasn’t – right

I understand that – I’m not talking about the Northwest Center – I’m talking about the special certificates

  • Right

Were the issues of job skill development, job coaches?

  • Yes

That was all discussed in this commission in relation to elimination

  • So let me

Let me finish my sentence – in relation to elimination of those certificates – was that discussed and how that was going to be taken into consideration

  • It’s not a factor because they consented and they agreed to keep those people at their level. We had two people – this isn’t like Texas where there were 121 certificates – we had 2

You haven’t answered my question yet

  • YES WE DISCUSSED IT AND WE DISCUSSED THAT THERE WEREN’T ANY BARRIERS WE WERE READY TO GO and so listen I really need you to understand, now listen I need you to understand, now listen

Now you back up

  • No

You’re in my space

  • I’m not in your space

City of Seattle Liaison “Shaun back up”

Back up

  • Ok we’re done – Good-bye

Ok – thank you

  • You’re abusive – I don’t need to speak to you, I’m a volunteer,

I’m a volunteer

  • FUCK YOU – GO FUCK YOURSELF – I DON’T WANT TO TALK TO YO

Bickley fabricates stories which border on delusional thought patterns.  

The list of the “great work” includes

  • Spearheading violations of the First Amendment by the Seattle Commission for People with Disabilities

 

  • Spearheading the rule change and legislation to eliminate special certificates – essentially making it impossible for people with disabilities to have any sort of integrated/independent job within Seattle. 

 

  • While being non-binary and dogmatic in using pronouns of they/them (by the way, non-binary is not a disability) bickley, is unyielding in his binary labels of disabled vs “the abled” 

 

  • Bickley and the whole Seattle Disability Commission should be gutted and started with a fresh set of people who do not have the extreme biases, hate speech and abuse the current commission roster chooses to utilize.  

 

Let’s get some people who know how to collaborate and work together and really break barriers-

Not this renegade group of activists. 

Abilify MyCite – NOS Magazine

When I have been blocked or censored from internet sites or Facebook pages for voicing an opinion that may not agree with the particular agency, I realize that I must have hit on something that is real and true that those groups or people do not want others to know about.

This censorship is destructive and prohibits progess, learning and collaboration and understanding.  This is very disturbing to me especially when this censorship is practiced by those who claim to be neurodivergent and advocate for self expression.

The most recent issue is in regards to an opinion essay written in NOS Magazine  which claimed coercion and forced ingestion of a new type of medication and how this will be used to put people in institutions.  The author claims that these psychiatric meds will be used with no consent and the side effects will be ignored while the client will be forced to be tracked with the medication.

Abilify MyCite

 

The scenario that the author describes is far from reality and it is clear the author does not understand how the medication sensor works or how it could be a benefit for those who may choose this type of medication.  The author writes from a perspective of paranoia and persecution.

I did reply to NOS Magaine on their Facebook page regarding the essay  “Human Rights Lawyer Shain M. Neumeier explains the terrifying implications of Abilify MyCite, a new drug that tracks compliance” and my comment was visible for one day.  The magazine editor even replied and stated that they publish point/counter point opinions and gave me information on submitting my counter point.  Both of those comments are now removed from the Facebook page and I have been blocked from interacting with that page.  My comment that I posted to the NOS Blog post was not approved by the moderator.

If the magazine publishes point/counter point opinions then why do they censor comments that may have a question or concern with what they wrote – particularly when it applies to the neurodivergent population?

My comment on Facebook was clarifying facts about the medication and that monitoring needs to be done for medications, side effects, bodily systems for ANYONE taking these medications – not just for the neurodiverse population.  A very different picture than waht Shain M. Neumeier painted.

I am awaiting a response from the editor explaining to me what was offensive and violated thier publishing rules.  My expectation is that I will not get a response.

Below is my opinion about this medication and a link to the New York Times article that Shain M. Neumeier referenced also in the NOS Magazine opinion essay.

This is certainly an interesting viewpoint on medication. The presumed restrictions and violations that this author writes regarding issues of “tracking medications” especially for neurodivergent people, seems absurd to me.

This is not about “forcing” people to take medications against their consent, or to cause people to experience undue side-effects. When taking these medications, people need to be monitored – no matter what “type” of person you are. This is one such tool that can be used – by choice – for those who desire it.

Many medications are monitored with blood levels to ensure that the person has at least a therapeutic range and certainly that they do not have toxic blood levels of a certain medications- not just medications that are prescribed for mental health issues. Other illnesses may be monitored by a variety of blood tests – glucose, red blood cells, platelets, ammonia, potassium, magnesium – just to name a few bodily functions that are monitored when taking medications. Again, this has NOTHING to do with being neurotypical or not – it has to do with being a human being and taking medications responsibily and appropriately to receive the best benefit.

In fact, many people may not even be aware that they have toxic levels of medications in their system and these monitoring tests are used to assess a person’s health and well being.

Also this author is assuming that this monitoring is “involuntary” – that is not necessarily the case. In fact, I had a patient once who requested to have surveillance of his medication administration to ensure that he was taking it correctly because he had stopped his medication and experienced psychotic episodes. He didn’t want that to happen again and wanted to stay out of the hospital. This was a method that worked for him. Again, it was his choice to have this electronic monitoring done of his medications.

Read the article regarding Abilify MyCite as referenced in the NOS article. Below are a couple of quotes –

“Patients who agree to take the digital medication, a version of the antipsychotic Abilify, can sign consent forms allowing their doctors and up to four other people, including family members, to receive electronic data showing the date and time pills are ingested.

A smartphone app will let them block recipients anytime they change their mind. Although voluntary, the technology is still likely to prompt questions about privacy and whether patients might feel pressure to take medication in a form their doctors can monitor.”

It is odd that a medication that is used primarily for schizophrenia has this digital technology and it may not be the optimal population for this. The article also addresses this issue.

“Asked whether it might be used in circumstances like probation or involuntary hospitalization, Otsuka officials said that was not their intention or expectation, partly because Abilify MyCite only works if patients want to use the patch and app”.

Some people will welcome this additional tool to help them remember to take their medication – others don’t need that reminder or would not want to use it. That is their choice.

This could also be a useful tool to ensure that the caregivers are providing the medication as prescribed. I know that my son lived in a facility in which the nurses signed off on medications they say they administered. I questioned them many times since my son was not recieving the expected and intended benefit of the medications which then led to more complications, stronger and more medications being prescribed. Finally, after he moved out and some of his conditions improved dramatically (the new caregivers were administering the medications appropriately) I requested the dispensed records from pharmacy, I realized that I was correct in my concern.

Such a system as with the Abilify MyCite would have picked up the extreme medication errors that my son experienced.

Abilify MyCite – First Digital Pill