DD Service System Task Force

The Developmental Disabilities Service System Task Force is currently meeting to discuss the future of the DD System in our state.  This Task force came about from legislation in 2011 (SSB 5459) which was aimed at consolidation and closure of our Intermediate Care Facilities for those with Intellectual Disabilities (ICF/IDs).  In our state we typically refer to these centers as Residential Habilitation Centers (RHCs).

The RHC is a campus community with comprehensive care for those with intellectual disabilities (ID).  Our Campuses are:

Fircrest – both an RHC and Skilled Nursing Facility for those with ID in Shoreline, WA

Rainier School – RHC – Buckley

Yakima Valley School – Skilled Nursing Facility – Selah

Lakeland Village – RHC and Skilled Nursing Facility Medical Lake

In addition to closing Frances Haddon Morgan Center and forming the DD Service System Task Force, SSB 5459 passed legislation to prohibit those under 21 from accessing the needed supports and services at the RHCs.   This legislation is in direct conflict with both the US DD Act and the 1999 US Supreme Court Case Olmstead which both clearly state the individual with their family/guardian can make the choice of an ICF/ID or community setting and that for many the ICF/ID may be the LEAST RESTRICTIVE ENVIRONMENT.

By passing this legislation which is clearly age discrimination against our youth, prohibiting them from accessing life sustaining supports which are available to others when there are no other alternatives for care and support, is accepting negligence and discrimination.  I cannot support this legislation and will do what I can so that our youth may be able to access the supports and services which they are entitled to by Federal Law and Supreme Court Decisions.

Next Meeting for The DD Task Force is Tuesday October 9th in Olympia.

Website for DD Service System Task Force

Please write your concerns or suggestion to the DD Task Force.  They need to hear the voices and concerns from those in the community settings.  They need to hear that those in the community support our RHCs as the safety net, respite care and also as a resource for the future to help with the increasing demand for care for our loved ones.

I believe that the RHC can be used much more efficiently to better serve ALL people with ID.  We need to find a way to share services.  We do not need to consolidate and close the RHC only to increase more demand in the community settings.  We have space available on the RHC campuses to grow and provide more services if our state would allow this to happen.

Right now, our state is prohibiting people with high service needs from accessing services.  Our state has been in an “deinstitutionalization” mode with little regard to cost of care  and then this creates more of a crisis situation.  It is time to break the crisis cycle.  We can do this but we need support and education.  It can be done.

We have the resources, We have the expertise, We have the space – all we need is the cooperation of our legislators and DD Advocates who oppose any form of congregate care.

People deserve the right to make an educated choice about regarding care and supports for their loved ones.

Residential Habilitation Centers in Washington State

Copy of Highest 30 Residential Clients by Cost and acuity 2-4-11

Cost of Care for High Support Needs Community Residents – data from Don Clintsman, Asst. Secretary of DSHS.  Please ask Mr. Clintsman about these costs – they are the direct care costs ONLY – this average is already higher than the average COMPREHENSIVE daily cost of the RHC.  This is a critical issue that is not getting across to the task force.  DDD presents these costs as if they are the total cost of care.  This is a huge error in data presentation that needs to be questions.

Dear DD Task Force September 20, 2012

September 25 letter to DD Task Force

Dear Friends and Colleagues

5 comments on “DD Service System Task Force

  1. I have submitted a petition to the White House to request enforcement of Olmstead to include the right of the disabled to choose institutional over community based living. We have until 12/20/2012 to accumulate 25,000 signatures. After reaching this threshold the White House agrees to review the information and send a response to all signing the petition. I am really hoping we can a strong show of support for this and any help you can provide is much appreciated.

    Please consider signing the petition and forwarding this information to others. We need to let the Obama administration know that enforcement of this decision has gone too far compelling states to close vital centers and putting the most severely disabled at risk for abuse and neglect.

    http://wh.gov/XLMA

    Additional information may be found at http://www.MurrayParentsAssociation.com

    Thank you.

    Laurie Stengler
    http://www.MurrayParentsAssociation.com
    #SaveILMurrayCenter

    Like

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