One would think that being a magazine devoted to neurodiversity and open to “publishing opinions from many corners of the neurodiversity community” that censorship and blocking participation from advocates in discussions is counter to the mission. Apparently, only those neurodiverse in the “right” way are allowed to comment and exchange opinions or answer questions from others.
Saskia Davis, published her thoughts about the article above on NOS Magazine. There was a follow-up comment to which Saskia wanted to reply and it was then that she realized that her post had disappeared and her reply was not able to be posted either.
I offered to publish Saskia’s responses on this site because I think they are worthy of being read and understood. The first comment can be read on Developmental Disabilities Exchange. The follow up comment is below in this post.
“NOS Magazine is a news and commentary source for thought and analysis about neurodiversity culture and representation. Expect long form journalism, reviews of pop culture, and more. NOS stands for ‘Not Otherwise Specified,’ a tongue-in-cheek reference to when a condition does not strictly fit the diagnostic criteria, or is in some way out of the ordinary.
Opinions: Not Otherwise Specified
Stories: Not Otherwise Specified
Perspectives: Not Otherwise Specified”
NOS Magazine is a publication for the neurodiversity community. As such, people who identify as a part of the neurodiversity community and/or who are neurodivergent in some fashion will be given publication preference in order to ensure that this publication is a voice of the community. We recognize and respect self-diagnosis as valid and do not have a standard of who is “disabled enough” to count.
Published pieces are not necessarily the opinion of NOS Magazine. We are open to publishing opinions from many corners of the neurodiversity community.
Responding to: (from Saskia Davis)
September 11, 2017 at 7:25 pm
“I going to share some examples people can to explain their love one support needs that don’t use mental age theory. I some people being asking me for alternatives……..” (http://nosmag.org/mental-age-theory-hurts-people-with-intellectual-disabilities/
“These are helpful suggestions. How would you help a person understand the level of constant, total care that is required for the support of someone who lacks the capacity to make safe decisions, lacks verbal ability to express what is wrong, and what s/he wants, but has enough, almost understandable vocabulary to frequently repeat the same few phrases, can’t safely mobilize herself anywhere, is absolutely distractable, and doesn’t care to focus on anything except neckties or hats or cars, will choke due to putting food in her or his mouth before swallowing the last bite if allowed to self feed, except that is impossible because s/he can’t load her own spoon, but can hold a glass and will choke if not dissuaded from laughing during drinking, while self-feeding, gets food all over her/his face, body and clothes, laughs with delight when something or someone falls on the floor and finds it great fun to empty surfaces of their contents to see them fall, or someone who can carry on a delightful, if limited conversation but, who, if asked questions or when another person wants his food or when he can’t have food from someone else’s plate, will throw a 20 minute tantrum just like those that two year olds throw, (only this person is 6 feet tall and weighs 160 pounds) hollering, throwing himself on the floor, writhing, kicking screaming, hitting, biting, and who has been unable to learn to tie his shoes or put them on the correct feet and who remains incontinent at the age of 21 despite many patient years of family members and caregivers’ attempts to help him achieve continence. In few enough words so that the reader or listener will stay engaged to understand the other points you are trying to make, how do you give a picture of such a person that allows another to understand the intensive level of care and careful planning for support that is needed and the struggles the person endures in order to make progress? Thanks in advance for your suggestions.”
The title of this post is a quote from Sara Luterman, editor of NOS Magazine in answer to my question regarding removal of my own posts.