Elimination of Special Certificates

The issue of the elimination of the special certificates for people with disabilities has been very controversial.  There have been many problems related to lack of transparency and accountability on the part of the Seattle Commission for People with Disabilities.

Many attempts to have a conversation with the Commission and collaborate have been denied which is a violation of The constitution of the United States, First Amendment.

The First Amendment provides individuals with the right to engage in protected speech without government interference. If a local government establishes a social media site to communicate with the public about agency business, the First Amendment will apply to the comments and posts made by others on that site.

So, the moderator of the agency page cannot simply delete, hide or block posts or people based solely on the content of the message that was posted.

The Commission blocked, censored and harassed community members, disability advocates, people with disabilities and stakeholders who had concerns and/or questions from interacting on the Commission’s public Facebook page.   This exclusion by the public entity of the Seattle Commission for People with Disabilities of the very people the Commission was set up to advocate for is an extreme example which is becoming all to common.

When ideology is used without consideration of other viewpoints as the sole decision making process, there can be many unintended consequences.  A healthy debate with varying viewpoints and a rational analysis to problem solve in the decision making process can help to mitigate the abuse of power that is used when decisions are based solely on ideology.  People do not have to agree but when there are discussions we can all learn something.

Many problems have been encountered in this process and I question the legality of the decisions that have been made when proper procedures were not followed.

  1.  June 2017 was the first mention of any issue of the elimination of the special certificates for people with disabilities according to the Commission’s meeting minutes.
  2. A quorum was not achieved at the June 2017 meeting in which the Commission reports they had a unanimous vote to eliminate the special certificates.
  3. According to the by-laws of the Commission they need a majority of appointed Commissioners  present in order to have a quorum.  During June 2017 there were 13 appointed Commissioners – they would have needed 7 Commissioners present for a quorum – they only had 6.  This means they would not have been able to have a meeting or a vote.
    • A Quorum needs to be present in order to have a vote
    • The so-called “unanimous vote” was actually invalid according to the Commission by-laws
    • June 15, 2017 minutes PwD
  4.  It was reported in July 2017 by the Mayor and Councilmember Herbold that there had been a unanimous vote by the Seattle Commission for People with Disabilities.  This article states that the Office of Labor Standards will begin rule revisions and a City Council vote before the end of the year.
  5. Revisions proposed to the City of Seattle’s Minimum wage rule – eliminating subminimum wages for employees with disabilities – August 17, 2017
  6. First public notice from OLS regarding Special Certificates requesting public comments – unfortunatley, the decision had already been made by former OLS Director Dylan Orr, Former Mayor Murray and Councilmember Herbold.  Was the information shared during legislative meetings in June 2017 by Commissioners Shaun Bickley and Matt Kanter representative of the community they represent?
  7. Office of Labor Standards (OLS) received the most comments on this issue than any other rule revision comment request in the past.  They received 70 responses and it had been reported that there was a “slight” preference for the elimination of the certificates.  (later found to be false when records were reviewed – see below)
  8. OLS announces Final Rule September 29, 2017
  9. If you submitted a comment you most likely received the following email from Karina Bull from OLS about September 30, 2017 with a copy of the Press Release dated September 29, 2017.

From: Bull, Karina

Sent: Saturday, September 30, 2017 7:15 AM

To: Bull, Karina <Karina.Bull@seattle.gov>

Subject: OLS Issues Final Rule Revisions for Seattle’s Minimum Wage Ordinance

Greetings,

Thank you for submitting a comment to inform our rulemaking process for subminimum wages for people with disabilities. We carefully considered all comments and sincerely appreciate your contribution to this process. Yesterday, our office announced the final rules; the announcement is below.

 

Again, thank you for your participation.

 

Regards,

 

Karina

Karina Bull

Policy Manager

City of Seattle | Office of Labor Standards

 

 

810 Third Avenue, Suite 375

 

Seattle, WA 98104-1627

 

Phone: 206-684-4536

 

karina.bull@seattle.gov

 

10. Given lack of transparency and accountability in this legislation, I began to do more research into how the decision had come to be made.

11.  Seventy comments were received by OLS – 33 (or 18 if duplicate scripts are not counted) were in favor of elimination of certificates; 37 were against elimination of certificates.  Clearly far from unanimous and from my perspective indicates there needs to be more research done on the issue.

12.  There were 15 comments which were identical to the script template that Commissioner Shaun Bickley had sent out and tagged many people on Social Media sites to send in to bolster his project –  45% of the comments in favor of elimination were this exact script.

 

[suggested script]  

Dear Ms. Bull  

I am writing to express solidarity with the Seattle Commission for People with Disabilities’ recommendations to end subminimum wage and the use of subminimum wage certificates in Seattle.  

As you know, the Commission conducted an extensive four-month review, and received overwhelming support for this course of action from both community members with disabilities and disability organizations. They also contacted the workers making subminimum wage along with their family members and employers, who have all agreed to this timeline.  

I believe that we should listen to people with disabilities, especially those with intellectual and developmental disabilities who are most impacted by this. They know what they need and we should support them and applaud them in their quest for equality before the law.  

I look forward to Seattle becoming the first location on the west coast to grant wage equality to workers with disabilities, and in finally ending this blatantly discriminatory practice.  

Sincerely,  

(Name)  

(Resident of Seattle, connection, etc)  

13.   Comment received from Karina Bull, Policy Manager of Office of Labor Standards regarding the corrections to the reported facts on the OLS comments.

Our office carefully reviewed the outpour of comments in favor of retaining subminimum wage, as well as the outpour of comments in favor of prohibiting the subminimum wage. Ultimately, the final rule was reached with strong support of our former Director, Dylan Orr, former Mayor Murray, and Councilmember Herbold. The more recent decision to codify this prohibition in our Minimum Wage ordinance was passed by City Council, 8-0 

14.   My view of this is that the comments sent in were basically meaningless in the decision making process.    I do not know what information Dylan Orr used  but I do believe that both former Mayor Murray and Councilmember Herbold were not provided with accurate information on the issue.  Again, the saying “Nothing about us, without us” was disregarded in this legislation.

Where is the accountability for the actions taken by this renegade Commission?  Do they represent what you need?  If not, join me in attending their meetings and providing much needed common sense and input.

Inclusive? Seattle?

SCPWD photo

I have had issues with the Seattle Commission for People with Disabilities for several months now.  I am not the only person who has been a victim of abuse by the current co-chair of the Commission .

The Commissioner apparently spearheaded a campaign to eliminate special certificates as a choice for disabled employees to have an alternative and accommodation in the work place.  There was total lack of transparency and accountability in the rapid elimination of these certificates which led to a new law in Seattle prohibiting these certificates.

In my many attempts to have a conversation, ask questions, voice concerns and provide additional information to the Commission and others involved, I have been accused of lying, spreading misinformation, harassment and  being abusive – yet my questions have not been addressed or answered.  I have no idea if they were ever even discussed within the Commission since they have not posted meeting minutes for over 7 months.

Yesterday, I again attended their monthly meeting.  I was able to give a public comment before the meeting and the Commissioner said that he would answer a question after they finished their agenda.  This recording was made at a public meeting in a public place (Seattle City Hall – Boards and Commissions Room) with several Commissioners present, the Seattle Civil Rights Liaison and many other community members and guests in the room.  The Commissioner was made aware of the recording.  In Washington State it is legal to record public meetings as long as the recording device is not intrusive.  This was not a “private conversation” and the topic matter was explicitly about the issue of elimination of special certificates.

Below is an audio recording of our “conversation”.  Beware of foul language.  The conversation starts about 48 seconds into the recording.

Co-Chair of Seattle Commission for People with Disabilities

I have written letters to Seattle Mayor Jenny Durkan, the Seattle City Council in addition to The Arc of King County, this Commissioner’s current employer to inform them of this continued abuse.  I have asked for the immediate termination of this Commissioner from the Commission and to not be recommissioned (his term expired April 30, 2018).

May 17, 2018,

Dear Mayor Durkan,

I am writing regarding prolonged abuse and harassment by Shaun Bickley, co-chair of the Seattle Commission for People with Disabilities.  My interaction with Mr. Bickley began in August 2017 with my concerns and questions regarding the supposed research and information that he, specifically, was sharing regarding information on the elimination of special certificates which allow certain employers to pay certain employees a certain wage for a specific job.

I understand the issues and the process that was utilized in passing this ordinance and then passing into law. There was no transparency or accountability on the part of this commission and efforts to have concerns voiced, questions answered and a conversation to understand how the change would greatly affect our community were censored. Comments that did not agree with the commission’s view were removed from their Facebook page and community members were banned from any interaction.

The accounting of comments to the Office of Labor Standards was inaccurate and prior to that the Mayor and City Council members were not informed of the exclusion of concerns and questions from community members.  Mr. Bickley reported that there was unanimous agreement among people with disabilities and organizations – a statement that is far from the truth.

Today, I was finally able to make a public comment and then after the meeting, I asked to speak with Shaun Bickley regarding “unbanning” me from the public Facebook page.  In the past, all my interaction with Mr. Bickley had been via email and this was the first time that I have actually met him in person.

There are many questions that need to be answered and that’s all that I have ever requested from the Commission in my comments which have been defined as “abuse and harassment” by Mr. Bickley.  This recording was made at a public meeting in a public place (Seattle City Hall – Boards and Commissions Room) with several Commissioners present, the Seattle Civil Rights Liaison and many other community members and guests in the room.  The Commissioner was aware of the recording.

Please listen to this short audio clip from the “conversation” I had today and tell me who is abusive.

I have written a complaint to the Office of Civil Rights in the Fall of 2017.  The response I received was that it was not their jurisdiction.

I ask for the immediate removal of this Commissioner from the Seattle Commission for People with Disabilities.  His term expired April 30, 2018 and I would ask that he not be re-commissioned.  His behavior and inability to have a discussion without becoming abusive is harmful to our community.  Regardless if he has a disability or not, no one needs to talk to another person in the tone, manner and language that this Commissioner uses.

Please respond to my concerns since this has been on ongoing problem with his interaction not only with me but with many other disability advocates in our community.  It is totally fine to disagree but it is not fine to censor and shut out community members who are stakeholders and live with disabilities.

Thank you,

Cheryl
Cheryl Felak, RN, BSN
Because We Care – Beyond Inclusion
Seattle, WA

Commission of Bullies and Chaos

Seattle Commission for People with Disabilities – a commission that sounds as if it’s diverse, inclusive and collaborative has proven to be something else.  It has been a commission of bullies who falsify information to the public.

About the Commission page

  1.  I have requested meeting minutes be posted their website.  The Commission responded that it was up to the city to post the minutes, that they had been submitted.
  2. I requested copies of the meeting minutes through City of Seattle Public Records Request for the minutes from June 2017 through March 2018.  My response was returned “The records you requested have not been created and finalized by the commission because of lack of a quorum.  As a result, there are no existing records that match your search.”  (Office for Civil Rights)
  3. How is a city commission able to function for over 8 months without a quorum and also elect new co-chairs?  How can they function without meeting minutes?

This Commission needs to have some direction and oversight.  It is run by people of questionable motives with little understanding of some of the real issues facing our community members with significant cognitive and developmental disabilities.

My experience with this Commission has only been since July, 2017 when I found out about their agenda to eliminate special certificates .  By the time I had any information on this there had already been work done through the Office of Labor Standards. While I know there have been and still may be some people with integrity on the commission, they are not the ones that are making decisions and speaking on behalf of this commission.

From what I have seen since July 2017 bullying and causing chaos have been the behaviors that have been accepted by the commission.  The Commission roster has changed and there are new co-chairs.

Without having a quorum for at least 8 months I’m very curious how decision have been made and why there has not been a quorum.  How can new co-chairs be elected without a quorum?  What guidelines does this commission follow in managing their meetings and work?

April 30, 2018  –  Shaun Bickley (apparently co-chair) and Jessica Williams-Hall terms expire.

Meet the Commissioners April 2018

commission PwD roster changes 2017 through 2018

 

 

Commission for PwD Discriminates against those with IDD

https://seattle.legistar.com/View.ashx?M=F&ID=5215197&GUID=132D578C-0E3D-4B68-A1B2-FDCB1FFA841F

Seattle Commission for People with Disabilities – Accountability to the Community

Last week, Mayor Jenny Durkan signed into law that Seattle will no longer issues special certificates to allow specific employers to hire specific employees to do a specific job for a wage that may be less than minimum wage.  These certificates typically were used by employers as an accommodation to allow them to hire people with significant disabilities that interfere with their ability to be as productive as a non-disabled peer.

For the people who worked under these certificates the job is much more than a wage to them.  The people involved typically work 2-25 hours a week, also received SSI cash benefits (which are then reduced somewhat with the earned wages  – see formula for this reduction below) and other supports in the community and home to assist them in activities of daily living and community integration.

This legislation was based on lies propagated by the Seattle Commission for People with Disabilities.  The information they used to push this harmful agenda was also a series of half-truths with censorship of concerns leading this group to say there was unanimous agreement among disabled people .

It is true that this request for information sent out from the Office of Labor Standards generated the most response they have received on any request.  But the information shared by the Commission took this a bit further into an outright lie.

The proposal to kill the exemption has generated “the largest amount of discussion the Disability Commission has ever received on a topic,” according to the letter. Subminimum wage is overwhelmingly opposed by workers with disabilities.” Commissioner Shaun Bickley says, he’s unaware of public opposition to the rule change

(From Seattle Weekly, August 18, 2017)

While the co-chair tends to lies,  Karina Bull, Policy Manager for Seattle Office of Labor Standards, reports a different account in this Housing, Health, Energy and Worker’s Rights Committee meeting dated March 29, 2018, She states “we had our  most robust rule making processes.  We received more comments for this change than we have for any other – we had almost 70 people respond with a slight preference for prohibiting the practice of sub-minimum wage for people with a disability. 

“Thank you for writing Councilmember Herbold regarding the subminimum wage issue. The Seattle Commission for People with DisAbilities (PwD) conducted a four-month review of Seattle’s policy and practice as well as held a public comment session to hear from the community and organizations. Additionally, they reached out to all the businesses that currently utilize the subminimum wage. The PwD Commission received no comment opposing the elimination of the subminimum wage certificates. Some people contacted Councilmember Herbold’s office concerned that people need the subminimum wage to get jobs.  Yet, no people with disabilities contacted Councilmember Herbold’s office to say so.  Since the PwD Commission, through their individual lived experiences, can speak to these issues best, Councilmember Herbold asked that I share with you excerpts from the PwD Commission letter that outlines several specific points as evidence against these concerns specifically and opposing the subminimum wage as a policy.  ”  (from correspondence with Alex Clardy,  Legislative Assistant to Councilmember Lisa Herbold)

Of note, the PwD Commission just copied/pasted part of a report from the APSE Advancing Employment Connecting People  (The Association of People Supporting Employment First) without understanding the background and other recommendations in the bullet points shared.

The Commission for PwD also lied about the numbers of people involved and their wages.   The total lack of understanding of what these jobs mean to the people actually involved is an outright act of discrimination.

The Commission  refuses to provide answers to critical questions with this legislation and the supposed research that was done.  Given that there was a transition plan for the enactment of the minimum wage law in Seattle and all the research that I have read on this issue (including the 3 reports the Commission used as their research) reports there needs to be a well planned and funded transition plan in place prior to elimination of special certificates.  Where is the transition plan and phase in of this legislation?  It appears that was not considered and there were immediate changes made which were harmful to those involved.

Unfortunately, again in an act of discrimination, there has been an elimination of these special certificates with no transition plan (at least that I have been aware even given my multiple requests for information on this issue).  The Commission’s responses to me on this issue accuse me of lying and spreading false information and publishing personal attacks and libel.

The interactions I have had with the Commission have been most frustrating.  Below are some of the first comments and interactions I had with the Commission my attempts to learn about the legislation.  I had been blocked from the Commission for PwD Facebook page so shared this to my personal page to which a Commissioner made these comments.

Cheryl Felak shared a post.

It needs to be noted that not ONE person on this commission has an intellectual and developmental disability and they do not understand the issues involved with the need for these certificates or that we all need to have choice and these certificates provide some choice for those who would be unable to work if they did not exist.

Another article about the Commission’s work in ending subminimum wage in Seattle.

About this article

 

Some workers now make 36 cents an hour, according to the Seattle Commission for People with Disabilities.
SEATTLEWEEKLY.COM
Maura Wachsberger
Maura Wachsberger Out of the 120 people who lost their jobs at my agency, 3 have jobs. All are part time and 2 out of the 3 are 1 hour a month. People are so angry and upset that there is no option for them to work. Makes me furious! It’s so obvious that it’s ridiculous!!!!! Keep options open!!!
Cheryl Felak

Cheryl Felak I plan on going to their next meeting – probably will get shouted down because I’m a guardian and according to this group do not speak for my son.

Seattle Commission for People with disAbilities
Seattle Commission for People with disAbilities Commission meetings are open to the public. Members of the public get 2 minutes for comment. You are welcome to attend, but I would appreciate you not spreading misinformation about the Commission as there are multiple members with intellectual and developmental disabilities even if you don’t like what we have to say.
Maura Wachsberger
Maura Wachsberger Sounds like you don’t like what Cheryl has to say.
Bonnie Sullivan
Bonnie Sullivan That’s a two-way street. Since she knows her son best she should be respected for that knowledge.
Carol Jackson Fenske
Carol Jackson Fenske …so why was she blocked from your comments section for talking about her son?
Cheryl Felak
Cheryl Felak since I am not able to make comments on the Seattle Commission for People with disAbilities Facebook page or reply to the comment you made on my page, I would like to know who you are who is responding to me. I’m not spreading misinformation, I have taken information from your own website – if it is wrong, please correct it.
Shaun Bickley

Shaun Bickley I’m not sure why you can’t respond when you can share from the page but okay. You’ve already been told that multiple members have an I/DD. I told you I did (I don’t see myself in that wall of text). Not everyone on the Commission is verbal. Multiple people with ID/IDD submitted testimony on this issue. Just because you don’t like what we have to say doesn’t mean it’s okay to pretend we’re not I/DD.

Post what you like, I would just appreciate you not spreading misinformation especially when disabled advocates have told you otherwise.

Cheryl Felak

Cheryl Felak Shaun Bickley Thank you for your response. I’m sorry but the testimonies are not on the website and the meeting minutes state that business and families declined testimony. There is quite a bit of misinformation that is being shared by this committee and when people who have questions about some of these issues are blocked from comments it perpetuates the spread of the false information.

Also, the tone of your writing is very disrespectful and undiplomatic. Accusing a guardian of not understanding the issues involved of living with a disability and denying the guardian the ability to perform their court appointed and legal responsibility is discrimination against those who have chosen to have a guardian.

Shaun Bickley

Shaun Bickley Declined public testimony. We still talked to them. OLS has talked to them. No one is objecting except people like you who aren’t impacted by it.

If I need a plumber, I’m going to talk to someone who understands the issue, not someone who lives with aplumber. If I want to hear about women’s health experiences I’m not going call and center husbands, fathers, brothers, and sons. Living around DD person is not interchangeable with BEING a DD person and I’m sorry if this is the first time anyone’s told you that.

And if I can level with you, suggesting you’re going to go to a meeting to shout down disabled people is pretty scary. Just because you can observe or make comment doesn’t mean you have a right to shout at people, to disrupt the meeting or to intimidate people.

Shaun Bickley

Shaun Bickley I’m not particularly interested in debating whether you subsume your child’s personhood here or anywhere else. If you want to see the letter the Commission wrote to the City Council dated June 21 it should be on the FB page. You’re free to submit comment on this or something else. I just ask that you not spread misinformation about people and that you not come to the meeting with the intention of shouting people down. Several of us have been in institutional/segregated settings or experienced violence at the hands of caregivers, so that kind of tone is an unwelcome abuse of power.

Cheryl Felak

Cheryl Felak Shaun Bickley Again, you have totally misinterpreted what I said – I never said that I would shout but that I would be shouted down – big difference.

Cheryl Felak
Cheryl Felak Shaun Bickley interesting that you assume that I am not impacted by this recommendation. You have made many assumptions and I would suggest that you listen and have a conversation with others who may have a different perspective than your view. There are ways to work together.
Shaun Bickley

Shaun Bickley You are not impacted. Every worker and family member who will be impacted by this change has been talked to already. I know their names, you are not one of them. At best this is a hypothetical option you wanted for someone else, but that’s not the same as being paid subminimum wage or even supporting a family member who is.

I appreciate the clarification re: shouting. Nobody needs to shout, there hasn’t been any shouting yet.

Cheryl Felak

Cheryl Felak Shaun Bickley I’m sorry that you have many misunderstandings regarding this issue and who it will impact – now or in the future. I am very interesting in reading the studies and testimonies of those who have submitted them. Are they referenced on the website too.

Cheryl Felak

Cheryl Felak Shaun Bickley the issue is much more complex than the minimum wage aspect and the impacts of such an elimination of choice will be far reaching. I would urge a more thorough investigation and study of the topic.

Have you or other commissioners looked at an overall increase in costs that may result from an increased need for more intense employment supports or other opportunities to help those with IDD interact and be involved in their communities?

Shaun Bickley

Shaun Bickley Cheryl Felak I will email you information if you’d like to provide it. However:

1) You still have a post up claiming that no one on the Commission has an I/DD when you’ve been told otherwise. That is lying.
2) It’s incredibly creepy that you’ve put up a public post listing out everyone on the Commission and whether or not you think they’re actually disabled. This is bordering on stalking behavior.

It’s kind of ironic because by virtue of BEING on a Commission you’ve automatically assumed that everyone there is Not Like Your Child, but actually listing out and evaluating non-elected, unpaid disabled volunteers is super sleazy.

Cheryl Felak

Cheryl Felak Which of the people on the commission have an intellectual and developmental disability? I see other disabilities but none that are intellectual and developmental. It’s interesting that the website gives these bios of the people – I was curious who made up the commission and so I read what was on the website. If it is incorrect than take it up with whoever from the commission posted the incorrect information.

I do not recall my ever giving an opinion if I thought the people on the commission had a disability or not – that is something that you have imagined. I did say that not ONE has an intellectual and developmental disability and I believe that is the case.

Shaun Bickley
Shaun Bickley It’s none of your business. I told you I’m not going to give you people’s diagnosis information. I am. Multiple others are. It’s fair to ask if anyone has an I/DD but it’s not appropriate to expect detailed personal information.
Cheryl Felak
Cheryl Felak So no one has IDD – I’m sorry but having a diagnosis of autism is not the same as intellectual/developmental disability. I would think that you would be aware of that. Maybe you are not aware of what an intellectual/developmental disability is if you believe that the people listed on the website have this combined disability.
 
Shaun Bickley

Shaun Bickley Autism is a developmental disability. Maybe a trip down wikipedia would be helpful to your level of information.

Yes, several people have both intellectual and developmental disabilities. The fact that you don’t like what we have to say doesn’t change that. Your behavior is disgusting, if you do feel the need to come please limit your interaction with me to something professional instead of screeching about what you think people’s disabilities are and are not.

Cheryl Felak
Cheryl Felak I am fully aware that autism is a developmental disability – as is cerebral palsy and other disabilities. But I have a hard time believing that people with advanced college degrees have an intellectual disability.
Carol Jackson Fenske

Carol Jackson Fenske Shaun Bickley But why, why are you quoted in the Seattle Weekly as having had NO negative response to your initiative? Looks/sounds like misrepresentation to me. Perhaps you don’t really know what it’s like to spend 20-30 years of your life totally focused on a loved one with severe disabilities, advocating every single day for what seems to make them happy? Maybe that loved one is able to communicate, but not to strangers, and not in a way that would be understandable to a stranger. Cut us a little slack here, really.

Maura Wachsberger I have never seen such unprofessional responses from someone who represents a government agency. At least in NY they pretend to listen to us before they ignore us. It’s not people first, it’s money first and closing this option for people who truly need it will save money. Terrible!

 

https://seattle.legistar.com/View.ashx?M=F&ID=5215197&GUID=132D578C-0E3D-4B68-A1B2-FDCB1FFA841F

Seattle Commission for People with Disabilities – Accountability to the Community

Elimination of Sub-minimum wage in Seattle

The Seattle Commission for People with disAbilities  has made a recommendation to the Seattle City Council to eliminate certificates which enable employers to pay people with specific disabilities a commensurate wage.  I know that there are discussions all across the country that are looking at issues of employment and wages for people with disabilities.

This is a quick update on this very heated discussion.  From what I can assume by the articles that I read and the correspondence I have had with at least two of the commissioners regarding this issue vie Facebook,  there has been little research or collaboration with those in our community who may be, now or in the future, affected by this proposal.

Attempts to offer insight, requests for research, transition plans and funding plans have been ignored and people who expressed concerns have been rudely and aggressively mistreated by at least one of the commissioners.

Seattle Commission for people with disabiltiies Shaun Bickley and Cindi Laws

Below is the first letter that I submitted on the Facebook page.  This led to the Facebook page administrator blocking me from further comments or reacting to any posts – and this post was removed.

I am the parent and guardian of a young adult with significant intellectual/developmental and mental health disabilities – all of a degenerative nature and I network with many other families, caregivers, guardians and people with IDD who totally disagree with the assumptions that you and others are making about those with disabilities.

Yes, the members of the commission may have disabilities but is the specific population of those with significant intellectual/developmental disabilities represented?  The population which identifies as disabled is extremely heterogeneous and we need to have choices available to ensure that all have a chance and opportunity to work. We are all very concerned regarding this issues. For many of these people who work under these certificates it’s not about making a living wage – it’s about having a job and being a member of the community, participating, sharing experiences and having daily goals and activities – basically adding meaning to their lives. 


Unfortunately, my son and others who experience some of the same types of issues he does, are not able to articulate their ideas, attend meetings, and speak in coherent sentences – even with the help of assistive technology, and so their voices are not heard. 


You do not speak for them – in fact, it is quite the opposite because you deny the people who know, love and understand them, the opportunity to provide their ideas and choices. These people are their friends, families, guardians, caregivers, coaches, case managers, co-workers. These are the people who are all better equipped to fill in and be a proxy for their voices. 


The fact that you make assumptions that you are speaking for all people with disabilities without taking into consideration those who are affected by this issue is an act of discrimination and devaluation of their personhood. 


We need these certificates to ensure choice – remember the saying “nothing about us, without us” – Please take it to heart!

Mr. Shaun Bickley, one of the commissioners, took offense with my letter, stating “”nothing about us, without us” refers to disabled people, not to parents, siblings, neighbors,  co-workers and other allies”.  He wrote that they (the commission) were all disabled and therefore can speak for all people with disabilities – whereas, guardians’ concerns are only self-serving.  He wrote that all people, even if they can just move one muscle, can make their choices known – regardless if others understand them or not.  (I am very confused by this since if others do not understand, how are their choices known?)

In looking at the members of the commission I noticed that several are lawyers, a few have PhDs and several others have a variety of advanced college degrees, one is a filmmaker and an artist,  one is a medical doctor  – I’m curious which one has an intellectual/developmental disability?  This is the question that got me blocked from the Facebook page as it was seen as using “degrading language and making people feel unsafe.”

More to come – letters have been sent to The Seattle Commission for People with Disabilities, the Mayor’s office, the Office of Labor Standards and to each member on the Seattle City Council.