HB 1706 – another striker bill

 

Change Improvement Development Adjust Transform Concept

Change Improvement Development Adjust Transform Concept

Very interesting hearing today in the Senate Labor & Commerce Committee regarding EHB 1706.  A packed house with people from all over the state to testify against the bill as written – self advocates, healthcare professionals, parents, guardians and other advocates.  There were also the usual people/organizations who were there to testify in support of EHB 1706 but their voices have already been heard.  It was refreshing to hear some new perspective on issues that affect us and those we work with, live with and love.

One hour of testimony with 1 minute each, one after the other as fast as could be done.  All people were then asked to leave the room and there was an executive session – The outcome was passing  EHB 1706 striker April 1 2019  with a vote of 5 -1.

Some notes from the Fiscal note which actually does indicate there will be a fiscal impact to this legislation:

Developmental Disabilities Administration (DDA)
It is assumed that only individuals eligible to receive Individualized Technical Assistance services under an existing DSHS Developmental Disabilities Administration (DDA) program will receive Individualized Technical Assistance services due to an expiring Special Certificate. It is estimated that 421 eligible DDA clients will receive the Individualized Technical Assistance specified in this legislation. It is assumed:
•Each client will receive 20 hours of Individualized Technical Assistance
•Individualized Technical Assistance cost is $130 per hour
•The 421 clients will be provided services between July 1, 2019 and June 30, 2021

One FTE (WMS Band 1) will be needed between July 1, 2019 and September 30, 2021 to:
•Coordinate with the Department of Labor and Industries
•Prioritize clients for services
•Determine service options for clients
•Track client progress
•Accumulate and organize the data required to be reported in Section 5 of this legislation
•Prepare the required reports
Total cost for this FTE is estimated at:
Fiscal Year 2020: $126,000 ($72,000 GF-State)
Fiscal Year 2021: $120,000 ($68,000 GF-State)
Fiscal Year 2022: $ 30,000 ($17,000 GF-State)
Total Costs:
Fiscal Year 2020: $674,000 ($401,000 GF-State)
Fiscal Year 2021: $668,000 ($397,000 GF-State)
Fiscal Year 2022: $ 30,000 ($17,000 GF-State)

Division of Vocational Rehabilitation (DVR)
The DSHS Division of Vocational Rehabilitation (DVR) may see an increase in the number of DDA clients referred for services. However, it is assumed that the increased referrals will not be significant and the related costs can be absorbed within existing resources.

All in all a step in the right direction and some indication that the voices of those actually affected is beginning to be heard – a victory so far in that there have been some crucial corrections made – still some issues to work out.

April 1 testimony opposing HB 1706

Stop the Charade

Stop the charade and listen to Senator Walsh tell the honest truth in the statement prior to the public hearing on SB 5753.

Personally, I’m tired of being ridiculed by so-called advocates who talk about parents who have fears – look at the mess we are in -parents and caregivers of those with significant support needs know all too well about the realities.

These fears are based on reality. For those who ridicule us, go visit people like Kevin in the hospital and tell his mom that she is just fearful of what can happen.

Kevin’s 33rd day in a hospital room.

The last 4 days Kevin has become increasingly desperate. The nursing staff at

the Medical Care Unit where he is are such a great group of professionals. They

have tried to keep him occupied, even taking him on wheel chair rides around

the floor, but each day that passes he grows more restless. Kevin is a 5 year old

(6’2” tall) that wants to go back to his safe/familiar room, surrounded by his

things. He also wants to go for hikes, to the store, the movie theater, and the

library. Now he is hitting himself in the stomach and legs with such force that

his legs and abdomen are completely covered with purple and black bruises.

This is the only way that he can deal with this overwhelming stress. He is

limping because he hurt his left leg during the self-injuring actions that now

are happening continuously throughout the day. Yesterday he became

increasingly anxious with each passing hour, pleading for his “Bellingham

house”. He began to scream, hit his room door and window and security was

called. Kevin hit his RN and one of the security guard during the incident when

they attempted to keep him safe in his room. Throughout the day he was

heavily medicated with no success. At night, he managed to escape from his

room and run downstairs to the hospital lobby and then outside where he was

wrestled by security until Bellingham police arrived.

After he was guided back to his room by the police he was finally medicated

with an IM injection of B52 (Benadryl/Haldol/Lorazepam). He has been asleep

since then, in a way I feel this is better for him to stop his mental anguish and

physical self-inflicted pain.

This situation is a disgrace, my child deserves better from our system. He will

severely injure hospital staff or will be gravely injured by medication

administration and/or being restrained.