Activist or Advocate? Seattle Style.

I have come to realize that when an activist is unable to address questions about issues, the activist digresses to personal attacks that have nothing to do with the issues.  This is a diversionary tactic to distract the public from the truth.  It often works or they wouldn’t use this tactic.   The so-called personal attacks could be totally made up (as most are in this situation) or a major twisting of the objective truth.

Case in point – issues of the sub-minimum wage ban in Seattle.  The Seattle Commission for People with Disabilities instituted this rule change and subsequent legislation without listening to concerns in the community.   It’s difficult to separate the Commission from the current Co-Chair, Shaun Bickley since Bickley self-identifies as the person who got this ban in place.  If people credit the Commission, Bickley becomes upset that his name was not mentioned as the person responsible.  This is why many of the issues I address are written about/to Bickley since he was the person answering for the Commission.  This is not a personal issue about Bickley himself, but Bickley, acting as Co-Chair of the Commission and as a public servant for the City of Seattle.

As far as I’m concerned, any one of the Commissioners could answer but they have left it to Bickley to do the talking.  So, my calling out Bickley is only because Bickley is the one doing the communicating for the Commission.

But, Bickley, has made it a personal issue against him, when in fact,  it’s not about him at all but the issues.  I have only been trying to get a conversation on the issues.  Bickley writes as if I have been trying to invade his personal life – I know nothing about the person, his life, and have never tried to contact him personally outside of the Commission.  The fact that Bickley seems to think that the Seattle Commission for People with Disabilities is his personal domain (Facebook and meetings) is a problem.

Bickley blocked me from the Commission Facebook page (he does state this himself) and that was a violation of the First Amendment.  Bickley claims that I cried ‘censorship” when he blocked me from contacting him.  The way he writes this it appears that he blocked me from his personal page and I got upset about that.  I have no idea since I have never gone to his personal page and never tried to contact him personally.  He did block me from the Commission page but that is not HIS page – it is a City Commission page and yes, that was a concern.  Bickley does not seem to be able to distinguish between himself and the Commission.

Bickley recently posted a long diatribe for Autism Speaking Day 2018 on his friends, Kassiane Asasumasu’s blog “Radical Neurodivergence Speaking”.  This essay is an exercise in narcissistic victimization delusions.  When I informed Kassiane Asasumasu of the libelous essay, she wrote ” It’s not libel when it’s true. It’s the best sourced item I’ve ever published.”  Maybe Kassiane Asasumasu never checks sources if she believes this nonsense too.  

For documentation and clarification of letters I have sent to The Arc of King County (Bickley’s place of employment which he claims I have visited and contacted many times asking for his removal).  Bickley also claims that I have shown up in person at his job to demand my dismissal, as well as at meetings he attends – including Commission meetings.    Yes, I have attended Commission meetings and one SAIL meeting with my disabled son but have never shown up at his place of employment regarding anything having to do with him.   These are public meetings for disability advocacy.  The Arc of King County is an advocacy agency for people with intellectual/developmental disabilities – something that I have been involved in for over 20 years.

Letter to Ramona Hattendorf, The Arc of King County, regarding the abusive response at a public meeting by Co-Chair Bickley – May 2018

Correspondence with Ramona Hattendorf regarding issues with Seattle Commission and explanation of events which have occured. June 2018

Bickley writes – she “tried to physically prevent me from exiting the Commission room, probably hoping to entrap me into shoving past her to escape so she could claim to be attacked by the big bad autistic.”

This statement is clearly a fabrication.  I left the room with the Office of Civil Rights Liaison, who is also heard on the recording saying “Shaun, back up”, and Bickley was nowhere near me at the time.  He was still in the Boardroom talking with others when Marta and I left the room in conversation.

Letter sent via blind cc to all those who submitted public comments to OLS May 2018 – I assume that the person that Bickley refers to has partner in this comment “She’s contacted many others, advocates and friends, including my partner, to warn them what a terrible person I am.” maybe one of the 70 people on this list.  This was also the only email that I EVER sent to Bickley’s personal email (except for the reply to his “cease & desist” letter)

Correspondence with Ramona Hattendorf, The Arc of King County, regarding the letter by sbickley@thearcofkingcounty.org regarding elimination of sub-minimum wage statewide – October 2018

As a follow up, the false accusations and libelous comments posted and shared on many Social Media sites regarding not only issues with me but with other disability advocates who have questioned him, are acts of aggression and harassment.

Bickley has NO evidence of the accusation he has fabricated and so the tactic is to make personal attacks and take on the abused victim role.  All I can say is that must be a very sad place to be and a sad place to see the world from.   I do hope that someone is able to talk with him and help him to come to grips with reality but given what I have learned about those with this type of personality disorder, it rarely happens unless that person can acknowledge fact.

And, Bickley, if you are reading this, please do provide supporting documentation for your claims because I have not seen the evidence.  Also, please discuss the issues as I have requested over and over again.

National Council on Disability – Employment

The Arc of King County has a representative, known to harass and bully disabled community members and disability advocates speaking as a panelist at the upcoming National Council on Disability Quarterly meeting.

Why is the Arc of King County enabling this abusive person to continue in this role?  Please contact the Arc of King County and ask why they encourage this type of behavior?

PLEASE NOTE CORRECTION SENT OCTOBER 22, 2018 FROM NCD REGARDING CALL-IN PHONE NUMBER – ALSO LIMITS ON PUBLIC COMMENTS – THEY ARE NOT TAKING COMMENTS ON EMPLOYMENT

We apologize for posting the incorrect call-in for tomorrow’s board meeting in our earlier email. Please note the change below.

**CORRECTION**

NCD’s Council Members will meet tomorrow, October 23, in Jackson, MS, to receive presentations on its latest report, “New Deal to Real Deal: Joining the Industries of the Future,” including a consumer panel to discuss it. A lunch break will follow that panel. Following lunch, the Council will receive a series of presentations from a bioethics and disability panel on the topics of genetic testing and gene editing, organ transplant policy, the use of quality adjust life years to limit healthcare, and physician-assisted suicide. Following a brief break, the Council will next receive a presentation regarding involuntary institutionalization as a result of disasters. The meeting will then include a time for public comment on NCD’s bioethics topics, before concluding with a brief period for any unfinished business.

This meeting will occur in Jackson, Mississippi at the Hilton Garden Inn Jackson/Downtown, Triple C’s: Club, Crown, Coronet, 2nd Floor, 235 W Capitol Street, Jackson, MS 39201. Interested parties may join the meeting in person at the meeting location or may join by phone in a listening-only capacity (other than the period allotted for public comment noted below) using the following call-in information:

Teleconference number: 1-800-667-5617
Conference ID: 6973399
Conference Title: NCD Meeting
Host Name: Neil Romano.

CART:
A CART streamtext link has been arranged for this meeting. The web link to access CART on Tuesday, October 23, 2018 is:
https://eur02.safelinks.protection.outlook.com/?url=http%3A%2F%2Fwww.streamtext.net%2Fplayer%3Fevent%3DNCD-QUARTERLY&data=02%7C01%7C%7C7d1150d77ee243688cda08d6382a42b8%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C636758151489616659&sdata=qMb8Rlq3VyzCNmnOFNhNbAa1uV5%2BFHVtY2ZowthTxVA%3D&reserved=0.

Accommodations:
Those who plan to attend the meeting in-person and require accommodations should notify NCD as soon as possible to allow time to make arrangements. To help reduce exposure to fragrances for those with multiple chemical sensitivities, NCD requests that all those attending the meeting in person refrain from wearing scented personal care products such as perfumes, hairsprays, and deodorants.

AGENDA: The times provided below are approximations for when each agenda item is anticipated to be discussed (all times Central):

Tuesday, October 23

9:00-9:15 a.m.–Welcome and introductions
9:15-9:45 a.m.–Executive reports
9:45-11:45 a.m.–“From the New Deal to the Real Deal: Joining the Industries of the Future” national disability employment policy and  consumer panel
11:45 a.m.-1:15 p.m.–LUNCH BREAK
1:15-3:15 p.m.–Bioethics and disability policy panel
3:15-3:30 p.m.–BREAK
3:30-4:15 p.m.–Involuntary institutionalization as a result of disasters policy panel
4:15-4:45 p.m.–Town hall to receive comments about bioethics and disability (The five areas NCD is conducting research on include: organ transplants; medical futility; Quality Adjusted Life Years; physician assisted suicide; and genetic testing.)
4:45-5:00 p.m.–Unfinished business
5:00 p.m.–Adjourn

Public Comment:
NCD will receive public comments limited to those regarding NCD’s bioethics and disability research areas–organ transplants; medical futility; Quality Adjusted Life Years; physician assisted suicide; and genetic testing. To better facilitate NCD’s public comment, any individual interested in providing public comment is asked to register his or her intent to provide comment in advance by sending an email to PublicComment@ncd.gov with the subject line “Public Comment” with name, organization, state, and topic of comment included in the body of your email. Full-length written public comments may also be sent to that email address. All emails to register for public comment at the quarterly meeting must be received by 5  p.m, EDT, Tuesday, October 22, 2018. Priority will be given to those individuals who are in-person to provide their comments during the public comment period. Those commenters on the phone will be called on per the list of those registered via email. Due to time constraints, NCD asks all commenters to limit their comments to three minutes.

More Information:
If you have any questions about this meeting of the Council, please contact Anne Sommers at asommers@ncd.gov.

 

Screenshot (63)

Tune in on Tuesday, October 23, 2018 at 7:45 AM to listen to the panel (CALL-IN NUMBER:  800-667-5617, Conference ID: 6973399; Conference Title: NCD Meeting; Host Name: Neil Romano) have a discussion regarding

National Disability Employment Policy, From the New Deal to the Real Deal:

Joining the Industries of the Future

I am anxious to hear the comments of Shaun Bickley, representing Arc of King County, regarding his activism in Seattle which led to the elimination of the special certificates.

I wonder how Bickley will address the fact that he withheld critical information from the City Officials, falsified information, negated the research and report done by the National Council on Disability, bullied and harassed other disability self advocates and community members, refused to allow public comment on city websites of the Seattle Commission for People with Disabilities or that 7 of the 8 employees in Seattle personally affected by this law had their work hours reduced.

Will Bickley be accountable to the problems that have been raised by community members?

NCD Quarterly Meeting Agenda October 2018 – Shaun Bickley, Arc of King County, as panelist

I will be submitting a public comment – if you are so inclined to do so, the information from NCD is provided below.

 

 

PUBLIC COMMENT: To better facilitate NCD's public comment, any 
individual interested in providing public comment is asked to register 
his or her intent to provide comment in advance by sending an email to 
PublicComment@ncd.gov with the subject line ``Public Comment'' with 
your name, organization, state, and topic of comment included in the 
body of your email. Full-length written public comments may also be 
sent to that email address. All emails to register for public comment 
at the quarterly meeting must be received by Monday, October 22, 2018. 
Priority will be given to those individuals who are in-person to 
provide their comments during the public comment period. Those 
commenters on the phone will be called on per the list of those 
registered via email. Due to time constraints, NCD asks all commenters 
to limit their comments to three minutes. Comments received at the 
October quarterly meeting will be limited to those regarding NCD's 
bioethics and disability research areas--organ transplants; medical 
futility; Quality Adjusted Life Years; physician assisted suicide; and 
genetic testing.

Seattle Commission issues apology

Update (October 12, 2017) 

I have been asked by some commissioners to file a formal complaint with the City of Seattle regarding the abusive nature of interactions between a particular member of the Seattle Commission for People with Disabilities and community members and organizations who had a concern. 

If you or others you know felt that a member of the Seattle Commission for People with Disabilities was abusive or inappropriately criticized you in their response to you, I have been asked to send a formal complaint to both the Commission and the Office of Civil Rights – Seattle Department of Civil Rights – complaints Thank you.

 

This past week a representative from the Seattle Commission for People with Disabilities sent an apology to me for being banned from their Facebook page by one of the page administrators.

According to the representative, the page administrator took things way too far.  Because of this incident, they have instituted a temporary social media policy and reassigned roles.  The Commission will be formally adopting a policy in October.  Until that time, you and another have been “unbanned.”

The commission will, however, be moderating the page tightly and will remove posts that become “inflamed” or that attack another.  You and Friends of Fircrest, were attached because of one person’s vociferous opinion about Fircrest and his mixing his personal opinion with that of the Commission (which has not yet taken a position.)

 

I appreciate the acknowledgment of the censorship and accept the apology.  I do hope to be able to attend upcoming meetings to provide another voice to the conversation.

We need to have these conversations to build a stronger community.